Rare Disease Day 2019

Sign up to celebrate¬†Rare Disease Day 2019. We will be hosting our annual receptions at the Senedd in Cardiff, the House of Commons in London and the Scottish Parliament Building in Holyrood. Rare disease patients and their families are invited to join politicians and other stakeholders in the rare disease community to mark Rare Disease […]

Industry webinar

Join the Genetic Alliance UK Policy Team, on 13 December, 10:00¬†‚Äď 10:50, to find out the key policy areas that we are working on.¬†During the webinar we‚Äôll be covering four topics: Access to rare disease medicines We‚Äôll provide an update on our Resetting the Model project. The project aims to design a new health technology […]

RARE DISEASE DAY 2018

Sign up to celebrate¬†Rare Disease Day 2018. We will be hosting our annual receptions at the Senedd in Cardiff, the House of Commons in London and the Scottish Parliament Building in Holyrood. Rare disease patients and their families are invited to join politicians and other stakeholders in the rare disease community to mark Rare Disease […]

Rare Disease Day 2017 – Reception at the Senedd

Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd. The theme for Rare Disease Day 2017 is: ‘Research brings hope to people living with a rare disease’. The event will include an update on progress with implementing the Welsh Government Rare Disease Implementation Plan as well as information about Wales […]

Rare Disease Day 2017 – Westminster Reception

Join Rare Disease UK for our annual Rare Disease Day Westminster Reception. Speakers include: Nicola Blackwood MP,¬†Parliamentary Under Secretary of State for Public Health and Innovation Ben Howlett MP, Chair of the All Party Parliamentary Group on Rare, Genetic and Undiagnosed Conditions Alastair Kent OBE, Chair of Rare Disease UK Fiona Marley, Head of Highly […]