Campaigning on behalf of all those affected by a rare condition

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We are the national campaign for people with rare diseases and all who support them. We provide a united voice for the rare disease community by capturing the experiences of patients and families. We work with our supporters to raise the profile of rare diseases across the UK. We seek to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases. 

Anyone with an interest in rare diseases can support the work of Rare Disease UK.

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Our Work

Rare Disease UK is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

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