News & Events

Alert Card Report

Last Reviewed 26/02/2020

By Rosie

At our Westminster reception for Rare Disease Day on Wednesday 26 February, we launched our alert cards report.

This report, prepared with the help of Genetic Alliance UK member organisations, Rare Disease UK supporters and clinicians, aims to remind NHS England of its commitment to implement alert cards for rare disease patients, represent the patient experience of using alert cards, and to examine what might work well with the form of an alert card.

Read the full report here

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