“This closed group is for people diagnosed with Fibromuscular Dysplasia who live in the UK and Ireland.
We aim to support individuals with fibromuscular dysplasia (FMD), a rare disease, and its associated connective tissue disease diagnoses. Where possible we will help education FMD patients by liaising with healthcare professionals regarding FMD.
We aim to liaise with other associated patient groups, charities, healthcare professionals, academics and others who conduct or support research in FMD. “