It will help ensure the
efficient use of scarce expertise, and the targeted use of health care resources to maximise the benefits for all patients and families affected by rare disease across the UK

Latest Partners

Action Duchenne

Arachnoiditis.co.uk

Association for Glycogen Storage Disease UK

British Paediatric Orphan Lung Diseases

HUM NAWA

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Rare Disease UK Members

Rare Disease UK has over 500 registered members including academics, clinicians, industry, individual members and patient organisations.

For more information and to join Rare Disease UK please click "Join Us"

Here is a list of organisations and industry members:

Industry

Patient Organisations and Others
A - F / G - L / M - R / S - Z

 

Industry

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Organisations  

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