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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

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Rare Disease UK Members

Rare Disease UK has over 1,400 registered members including academics, clinicians, industry, individual members and patient organisations.

For more information and to join Rare Disease UK please click here

Here is a list of organisations and industry members:



Patient Organisations and Other Charities

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Professional societies and research organisations

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 *Rare Disease UK has not verified these websites for content or accuracy