Campaigning on behalf of all those affected by a rare condition

Latest from Rare Disease UK

Reconfiguration of UK Rare Disease Forum

News

Reconfiguration of UK Rare Disease Forum

Patient Empowerment Group calls for coordination in England

News

Patient Empowerment Group calls for coordination in England

I have a rare condition called Lipid Lipase Deficiency, or LPLD.

Patient Experience

I have a rare condition called Lipid Lipase Deficiency, or LPLD.

Alison's speech from the inaugural meeting of the APPG on rare, genetic and undiagnosed conditions

Guest Blog

Alison's speech from the inaugural meeting of the APPG on rare, genetic and undiagnosed conditions
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We are the national campaign for people with rare diseases and all who support them. We provide a united voice for the rare disease community by capturing the experiences of patients and families. We work with our supporters to raise the profile of rare diseases across the UK. We seek to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases. 

Anyone with an interest in rare diseases can support the work of Rare Disease UK.

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Our Work

Rare Disease UK is the national campaign for people with rare diseases and all who support them. We believe that everyone living with a rare disease should be able to receive high quality services, treatment and support.

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Patient Empowerment Group

Our Work

Patient Empowerment Group

Rare Disease Day 2016

Our Work

Rare Disease Day 2016

Rare Disease Day

Our Work

Rare Disease Day

The Rare Reality (2016)

Our Work

 The Rare Reality (2016)

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