It will help ensure the
efficient use of scarce expertise, and the targeted use of health care resources to maximise the benefits for all patients and families affected by rare disease across the UK

Latest Partners

Action Duchenne

Arachnoiditis.co.uk

Association for Glycogen Storage Disease UK

British Paediatric Orphan Lung Diseases

HUM NAWA

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Join Us Free 

Membership of Rare Disease UK is open to anyone who has an interest in Rare Diseases. Individuals as well as Organisations are more than welcome to join and membership is free to everyone appart from industry. For more information on this initiative, or to find out more about Rare Disease UK Membership, please complete the Form below or if you prefer you can contact us directly.

Join Rare Disease UK Form:

Please complete the form below to join RD UK (Note: * = Required fields):

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