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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Living with Lowes

HLRCC Family Alliance

LAM Action

Living Beyond a Diagnosis

Cystinosis Foundation UK

MLD Foundation

CDKL5 UK

Ben's Friends

Kirsty's Cause

Bone Cancer Research Trust

PVNH Support & Awareness

PID UK

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Contact

Rare Disease UK is an initiative of Genetic Alliance UK a charity registered in England and Wales (no. 1114195) and in Scotland (no. SC039299). A company Limited by Guarantee (Number 05772999). For more information on Rare Disease UK, or to find out more about our work, please complete the Enquiry Form below or if you prefer you can contact us as follows:

Rare Disease UK, Unit 4D, Leroy House, 436 Essex Road, N1 3QP, UK.
t: 020 7704 3141
f: 020 7359 1447
e: info@raredisease.org.uk

Follow us on Twitter: @rarediseaseUK

Our facebook page: www.facebook.com/RareDiseaseUK