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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Living with Lowes

HLRCC Family Alliance

LAM Action

Living Beyond a Diagnosis

Cystinosis Foundation UK

MLD Foundation

CDKL5 UK

Ben's Friends

Kirsty's Cause

Bone Cancer Research Trust

PVNH Support & Awareness

PID UK

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Join RDUK Free 

Membership of Rare Disease UK is open to anyone who has an interest in rare diseases. Individuals as well as organisations are more than welcome to join and membership is free to everyone apart from industry.

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Please complete the form below to join RD UK (Note: * = Required fields):

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