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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK


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If you require information or support about a rare or genetic condition, please read the patient information on this page and contact our parent charity, Genetic Alliance UK.

Please note that staff are not medically trained and cannot provide advice on specific medical conditions/possible diagnosis. 

Rare Disease UK is an initiative of Genetic Alliance UK a charity registered in England and Wales (no. 1114195) and in Scotland (no. SC039299). A company Limited by Guarantee (Number 05772999). For more information on Rare Disease UK, or to find out more about our work, please complete the Enquiry Form below or if you prefer you can contact us as follows:

Rare Disease UK, Unit 4D, Leroy House, 436 Essex Road, N1 3QP, UK.
t: 020 7704 3141
f: 020 7359 1447

Follow us on Twitter: @rarediseaseUK

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