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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

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RDUK-Care-Coordinator-Report.pdf 

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RDUK Documents to Download

Please click on any of the below to download copies of the documents.

Patient Experiences of Transition Between Care Providers

Centres of Excellence for Rare Diseases 

Rare Disease Care Coordination: Delivering Value, Improving Services

Experiences of Rare Diseases: Patients and Families in Scotland

Experiences of Rare Diseases: Patients and Families in Wales

Funding Support for Rare Disease Research: Raising Awareness and Increasing Transparency

Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy:

Experiences of Rare Diseases: An Insight from Patients and Families:

EUROPLAN Conference Report

EUROPLAN Final Report

Media Volunteer Form

RDUK Annual Report of Activity 2009-2010

RDUK Annual Report of Activity 2010-2011

RDUK Annual Report of Activity 2011-2012

RDUK Annual Report of Activity 2013

Papers from RDUK AGM 2010

RDUK Constitution