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Rare Disease Day 2017

Rare Disease Day 2017

The Rare Reality (2016)

The Rare Reality (2016)

Patient Experiences of Transition Between Care Providers (2014)

Patient Experiences of Transition Between Care Providers (2014)

Experiences of Rare Diseases: Patients and Families in Scotland (2012)

Experiences of Rare Diseases: Patients and Families in Scotland (2012)

Experiences of Rare Diseases Patients and Families in Wales (2012)

Experiences of Rare Diseases Patients and Families in Wales (2012)

Improving Lives, Optimising Resources (2011)

Improving Lives, Optimising Resources (2011)

Experiences of Rare Diseases: An Insight from Patients and Families (2010)

Experiences of Rare Diseases: An Insight from Patients and Families (2010)

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Genetic Alliance UK provides the secretariat for the following parliamentary groups on Rare, Genetic and Undiagnosed Conditions :

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