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Genetic Alliance UK
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Coordination of Care
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Rare Disease Day 2017
The Rare Reality (2016)
Patient Experiences of Transition Between Care Providers (2014)
Experiences of Rare Diseases: Patients and Families in Scotland (2012)
Experiences of Rare Diseases Patients and Families in Wales (2012)
Improving Lives, Optimising Resources (2011)
Experiences of Rare Diseases: An Insight from Patients and Families (2010)
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