Rare Disease Day is an opportunity for the rare community to come together to raise awareness of the common issues affecting those living with rare conditions.
Each year we organise parliamentary events to mark the occasion. Unfortunately this year we can’t meet in person. However, we are determined to make 2021 count. That’s why we’re hosting a UK-wide virtual event to mark the day.
What is it about?
We’ll be hearing from people affected by rare conditions, exploring the UK’s Rare Diseases Framework which promises to improve the lives of all those affected by rare conditions, and hearing from health ministers from across the UK about how they are planning to implement the Framework in their nation.
The meeting will take place on Wednesday 24 February over Zoom. A draft agenda for the day can be found below.
To register for the meeting please click HERE