Tell your rare disease story

Are you interested in writing a blog about your experience of rare disease?

Whether you live with a condition yourself, or are a family member or carer for someone who does, we want to hear from you!

We believe that sharing real life experiences of rare disease is essential to raising awareness about the issues facing those who live with them. Patients inform every part of what we do at Rare Disease UK, and blogs can contribute to the work we do with other organisations and in parliament.

Please read our guidelines and then submit your blog idea to us by emailing [email protected].

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