Illuminating the rare reality

We are pleased to announce the launch of our 2019 Rare Disease Day campaign.

This year we are calling on you to help illuminate the reality of living with a rare condition. Visit our dedicated website to add your star and shine a light on your own rare reality.

You can share these assets through your social media networks – but make sure to use #RareReality so we can share your stars.

Patient organisations are able to sign up to use our SmartHub and create personalised assets featuring their logo. Please register for access to the SmartHub here.


You can also get involved by sharing our 2019 Rare Disease Day poster! Our poster is available in both PDF and PNG form.

Add a Twibbon to your profile picture to show your support for Rare Disease Day here.

Add a banner to all your emails. Download the ‘illuminating the rare reality’ banner here.

Add our open letter to Government calling for a refresh and review of the UK Strategy for Rare Diseases. If you are happy for your organisation’s logo to appear on the letter, please email [email protected] with your logo in a PNG or JPEG file, before 28 February.


Jack’s rare reality

Jeff’s rare reality

Further videos to be added soon…

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