Rare Disease Day is an annual event which provides the rare disease community across the world the opportunity to increase awareness of rare diseases.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
It is recognised in countries all around the world and is held on the 29 February (a rare day) when it is a leap year, and 28 February in other years.
The day is coordinated by Eurordis at an international level and by Rare Disease UK (RDUK) at a national level. Since 2009 we have coordinated awareness raising parliamentary events throughout the UK.