Work Category: Patient Empowerment

Patient Empowerment

Living with a rare condition: the effect on mental health (2018)

Patient Empowerment

Rare Disease Day (2018)

Patient Empowerment

Rate Your Rare Disease Care

Patient Empowerment

Tell your Rare Disease Story: Rare Disease UK Blog Guidelines

Coordination of Care

Rare Disease Day 2017

Diagnosis

Why England needs an implementation plan for the UK Strategy for Rare Diseases (2017)

Diagnosis

Implementation of the UK Strategy for Rare Diseases in England

Diagnosis

Patient Empowerment Group

Diagnosis

Undiagnosed genetic conditions and the impact of genome sequencing (2016)

Patient Empowerment

Rare Disease Day 2016