News & Events

HELP ILLUMINATE THE RARE REALITY

Last Reviewed 24/02/2020

By Rosie

This Rare Disease Day we want you to help illuminate the rare reality of what it means to live with a rare condition.

Microsite

Our microsite is open to everyone and has lots of ways to help you get involved with Rare Disease Day.

You can share your story and become a star in the night sky, connect with other rare disease patients and help build constellations.

You can also become a star fundraiser – challenge yourself to something new or throw a star-filled event to support our work of improving treatment, care and support for everyone affected by rare diseases.

Smart hub

Patient organisation supporters of Rare Disease UK will have access to the rare reality smart hub, where they can download customisable Rare Disease Day assets. On the smart hub, supporters  can create personalised posters, social media posts, infographics and more to share with their networks.

By getting involved with Rare Disease Day, you can help shine a light on the rare disease experience and support our work of improving treatment, care and support for everyone affected by rare diseases.

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