Trps Support Group Uk

TRPS Support Group UK provides sympathetic support to those with trichorhinophalangeal syndrome and their families.We are a small, not-for-profit organisation run by our members who all live daily with the effects of TRPS.Our main aims are:Helping others who may be without support or information about the conditionGiving reassurance to others through our own experienceRaising awareness of TRPS amongst the medical profession and the general publicWe offer support in a variety of ways:Providing a forum for exchanging knowledge and seeking further informationHelping others to source clinical help and managementProviding a listening ear when neededExchanging emailsArranging introductions

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