CSNK2A1 Foundation

CSNK2A1 Foundation is focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.

We aim to accomplish our mission by:

  • financing and encouraging meaningful research,
  • providing support to individuals affected and those that care for and love them,
  • promoting awareness,
  • educating patients, caregivers and health professionals and
  • advocating for issues important to our community.

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