CdLS Hope for Hasti

Hope for Hasti is a parent led charity, directed by Chris Brannigan, Hasti’s Dad, and Hengameh Delfaninejad, Hasti’s mum.  Hasti is just 8 years old and she dreams of being a chef and a dancer. Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS).  Hasti’s Mum and Dad decided to start the charity in January 2020 with view to funding the research and development of a gene therapy for CdLS. 

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