Alkaptonuria Society

Transforming the lives of AKU patients; through patient support, community building and medical researchLiving with AKU can be challenging, with loss of mobility and pain affecting patients’ physical and mental health.

This is why it is so important for us to provide support to our patients and their families, helping them come to terms with the diagnosis and best manage their condition.‘ The peer to peer support has really made a difference for me – helping to keep the isolation less’‘. It is wonderful to know that you’re not alone and there are others that you can learn from and there are people that care about you’ 

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