The Aarskog Foundation

We are an international Rare Disease, Patient Charity across 28 countries, living with the Rare Disease, Aarskog Syndrome.

Patients, carriers and families living with Aarskog Syndrome come together through The Aarskog Foundation to create an Aarskog community and a voice through advocacy and exchange experiences. Are YOU Aarskog Aware?

#AskAboutAarskog International Aarskog Syndrome Official Awareness week – 29th September – 4th October 2019 The “Ask About Aarskog?” campaign seeks to raise awareness around the importance of early diagnosis for children, critical to their future development, health and education, and to further address many life changing issues for Carriers, symptomatic of the Autoimmune disease Inflammatory Arthritis.


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