Industry supporters

Anyone with an interest in rare diseases can support Rare Disease UK. Individuals as well as organisations are welcome to join the campaign, which is free to everyone apart from industry.

Rare Disease UK is supported by restricted grants in the form of membership fees from industry, a list of these companies is available below. This funds the campaign and allows all other stakeholders to join the campaign for free. It does not determine or influence the work we carry out.

• Akcea
• Alexion
• Amicus Therapeutics
• BioCryst
• Biogen
• BioMarin
• Bluebird Bio
• Chiesi
• Illumina
• Janssen
• Kyowa Kirin
• Lupin Pharmaceuticals 
• Medpace
• Novartis
• Novartis Gene Therapies
• Orchard Therapeutics
• Pfizer
• PTC Therapeutics
• Roche
• Sanofi Genzyme
• Santhera Pharmaceuticals
• Sarepta Therapeutics
• SOBI
• Spark Therapeutics
• Takeda
• UCB
• Vertex

If you are interested in becoming an industry supporter, please contact Jan Bochiński, Fundraising Manager at [email protected].

You can read our policy on working with industry partners here.