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Genetic Alliance UK
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News
Our thoughts on the UK Rare Diseases Framework
Rare Reach Festival 2021
Star in the Rare Disease Day 2021 video!
MAJOR MEASURES TO PROTECT PEOPLE AT HIGHEST RISK FROM CORONAVIRUS
Rare Disease Day 2020
Health Awareness – Rare Diseases 2020
Alert Card Report
HELP ILLUMINATE THE RARE REALITY
Rare Film Festival 2020
Rare Disease Day 2020
Rare disease patient portraits
Annual update to Welsh Implementation Plan
Patient Empowerment Group: March 2019
Call to action: open letter to the UK Government
Update to the implementation plan for England
Illuminating the rare reality
UK Rare Disease Forum Conference 2018
Donate while you shop with Amazon
Support Rare Disease UK on #GivingTuesday
Annual Meeting 2017
Mental health and rare disease: report launch
Fundraiser of the Week: Maddy
Mental health support
UK STRATEGY FOR RARE DISEASES PROGRESS REPORT 2018: OUR RESPONSE
Implementation plans for England published
UK RARE DISEASES POLICY BOARD PUBLISHES SECOND REPORT
Emotional wellbeing and mental health survey
UK Rare Disease Forum Conference
One step closer: Rare disease plans for England
Children and Young People’s project
Rare Disease UK AGM 2016
Government announces plans to implement the UK Strategy for Rare Diseases with NHS England
We need your help: Westminster Hall Debate on the UK Strategy for Rare Diseases
APPG launches report on the implementation of the UK Strategy for Rare Diseases in England
Latest news from the Welsh Rare Disease Implementation Group
Join our Rare Disease Day photo challenge!
Members of Scottish Parliament meet rare disease patients
NHS England and NICE respond to rare disease patients
Department of Health and its arm’s length bodies provide evidence to APPG inquiry
MPs hear patients’ views on the implementation of the UK Strategy for Rare Diseases in England
What is the cost of managing a rare condition?
Reconfiguration of UK Rare Disease Forum
Rare Disease Day 2016 – Westminster Reception
Delivering for patients with rare diseases: Implementing a Strategy
Launch of the All Party Parliamentary Group on rare, genetic and undiagnosed conditions
We have our beginning, and our middle, but no ending…yet
The Rare Reality – An insight into the patient and family experience of rare disease: report launch
The Rare Disease Implementation Plan for Northern Ireland has been launched
APPG on rare, genetic & undiagnosed conditions: Open Letters
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