What is a rare disease?
News & Events
Genetic Alliance UK
Finding the missing pieces – how genomics is helping to diagnose and treat rare diseases
Family Fund: Sulaiman’s Story
How Family Fund Grants help disabled children and families
The importance of patient involvement in stem cell research
We need high quality data to understand the causes of rare diseases
“The clock is ticking on the lives of tuberous sclerosis complex patients”
Tell your rare disease story
7 things I dont have to tell my GP about rare conditions
Alison’s speech from the inaugural meeting of the APPG on rare, genetic and undiagnosed conditions
Don’t headbutt your situation. Outsmart it and try to be positive.
Why is co-ordinated care so important in rare disease?
Lisa Beaton on her experience of speaking at the RDUK AGM
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