CAUK Young Person's Ambassador Will Sears, who has multiple #cavernomas, has written a poem about his condition, what it's like to live with a #raredisease and how CAUK have helped him throughout his journey.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry. 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium.
A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit www.cavernoma.org.uk
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