Rare disease day is a time to understand more than ever the need to be aware of and importance of rare conditions of which there are over 6000! 4 of my conditions are classed as rare diseases, and all effect me in different ways!

Today is a time for people with rare diseases to speak up and show their stripes, and I was amazed to find out that 1 in 17 people actually have at least one rare disease! There are over 6000 acknowledged rare diseases, all of which are important and deserve a voice, funding, research and good treatment.

So today I wear my zebra’s and I proudly wear my top that says “Be Different”! as a message to all people with rare diseases to not be afraid to show your stripes💛


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