Luke Pembroke


My name is Luke. I was born with severe haemophilia B. In February 2020 I enrolled on to a gene therapy clinical trial. For my entry to the Rare Reach Festival I decided to give a brief glimpse in to my experience last year.

The rare disease community is something I am proud to be a part of and I have met some incredible advocates along the way. I truly hope to see the potential of gene therapy fulfilled for the wider rare disease community.

Find our more about rare disease here:​ Shot entirely on iPhone. If you want to know more about my experience living with haemophilia over the past 26 years, check out the other videos on my

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