Nieman-Pick UK

Amarii, 1 in 110,000

In many ways Amarii is a "normal" four year old boy; he always wears a cheeky smile, loves to play, and likes nothing more than playing dress up! But in reality Amarii has been diagnosed with the ultra-rare and devastating condition, Niemann-Pick disease type C (NP-C)...a condition often referred to as "Childhood Alzheimers" due to the severity of the symptoms that often accompany it.

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