It will help ensure the
efficient use of scarce expertise, and the targeted use of health care resources to maximise the benefits for all patients and families affected by rare disease across the UK

Latest Partners

Breathe On UK

Children's Mitochondrial Disease Network

Help the Hospices

Lymphangiomatosis & Gorham's Disease Alliance - Europe

Proteus Family Network UK

 

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Monthly Updates

Please use the links below to view our monthly updates

2010

2009