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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Motor Neurone Disease Association

dsd families

UK Potsies

The Neuromuscular Centre

Children's Liver Disease Foundation

Pemphigus Vulgaris Network

PSC Support

Birdshot Chorioretinopathy Uveitis Society

The Arran Brown Rainbow Foundation

Purine Metabolic Patients' Association

Ataxia South Wales

George Pantziarka TP53 Trust

Adenomyosis Advice Association

Meningioma UK

Hirschsprung's & Motility Disorders Support Network (HMDSN)

The Congenital Diaphragmatic Hernia Charity

DBA UK

IST UK

MCS-Aware