twitter facebook email
"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Living with Lowes

HLRCC Family Alliance

LAM Action

Living Beyond a Diagnosis

Cystinosis Foundation UK

MLD Foundation

CDKL5 UK

Ben's Friends

Kirsty's Cause

Bone Cancer Research Trust

PVNH Support & Awareness

PID UK

You are here: Home / Rare Disease Day / Rare Disease Day 2009 / Scottish Parliament 

Rare Disease Day at the Scottish Parliament

Rare Disease Day Logo

3rd March 2009

Rare Disease UK had its inaugural meeting in Scotland by way of a Parliamentary reception in the Garden Lobby of the Scottish Parliament on the 3rd March.  The Rare Disease reception was sponsored by Dr Ian McKee, who is a member of the Scottish National Party and an MSP for the Lothians. 

Claire Cotterill and Dr Ian McKee MSPClaire Cotterill and Dr Ian McKee MSP 

DelegatesAround 50 people attended the event including researchers such as Professor Sir Ian Wilmut (the scientist who cloned Dolly the sheep) and Professor Irwin McLean, a Professor of Human genetics who studies genetic skin disorders such as eczema and epidermolysis bullosa.  Other guests included charity representatives such as the Myeloma UK, the Turner Syndrome Support Society and Confer (the Scottish charity for Neurofibromatosis).  Several people whose families are affected by rare disease also attended, as well as representatives from the pharmaceutical industry and NHS Scotland.

Melissa Hillier speaking at the Scottish ParliamentMelissa Hillier speaking at the Scottish ParliamentMelissa Hillier, Assistant Director of Genetic Interest Group

 

 

 

 

Illiam Costain McCade, Dr Ian McKee MSP and Philip CrossanIlliam Costain McCade, Dr Ian McKee MSP and Philip Crossan

 Dr Nanette Milne and Melissa Hillier  Allan Clark and Des McNulty MSP
 Dr Nanette Milne and Melissa Hillier  Allan Clark and Des McNulty MSP
 John Shields and John Swinney MSP  Dave Thompson MSP and Melissa Hillier
 John Shields and John Swinney MSP  Dave Thompson MSP and Melissa Hillier

See Photos from our other events: