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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

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Rare Disease Day

Rare Disease Day is an annual event which provides the rare disease community across the world the opportunity to increase awareness of rare diseases and highlight rare diseases as a public health priority to government and health departments. It is recognised in countries all around the world and is held on the 29th February, a rare day, when it is a leap year and 28th February in other years.

The first Rare Disease Day was held in 2008 and since then it has continued to grow with this year’s event having input from patient organisations in over 40 countries. Events held in recognition of the day range from coffee mornings and sponsored walks, to large scale meetings between those involved in the field of rare diseases and talks to further educate the public and professionals.

The day is coordinated by Eurordis at an international level and by national alliances for rare diseases in individual countries. Since 2009 Rare Disease UK have coordinated awareness raising parliamentary events throughout the UK.

Further details on RDUK’s Rare Disease Day events can be found at the following links:

Rare Disease Day 2014

Rare Disease Day 2013

Rare Disease Day 2011

Rare Disease Day 2010

Rare Disease Day 2009