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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK


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Rare Disease Day 2009

This year Rare Disease UK and Genetic Alliance UK organised activities around International Rare Disease Day, which was on the 28th February. Three parliamentary receptions to raise the profile of rare diseases and to campaign for the development of a National Plan took place in London, Cardiff and Edinburgh. 

For more information and to see photos of the events please follow the links below:

Westminster Reception

Welsh Assembly Reception

Scottish Parliament Reception