Rare Disease Day contact campaign – Scotland, Wales and Northern Ireland
We need your help! Please get in touch with your elected representatives!
Dear RDUK member,
As you know its Rare Disease Day on the 28th February and one of the main aims is to raise awareness of rare diseases – obviously a key group that we need to raise awareness amongst is politicians. As a result we would be very grateful if you could contact your elected representatives letting them know about Rare Disease Day and asking them to attend the Rare Disease Day receptions. Below you will find template letters for you to adapt and send depending on whether you live in Scotland, Wales or Northern Ireland.
Note: Template letters for people who live in England will be coming shortly – we haven’t forgotten about you!
If you are a patient organisation please get your members in Scotland, Wales and Northern Ireland to send letters too – the more letters we send the more awareness we can raise!
You can either post or email your letter and details on how to find out who your elected representatives are can be found below. A handy website to email your representatives is http://www.writetothem.com
We would be interested in hearing whether you get a response from your elected representatives so that we can follow it up if needs be.
Skip to:
Scotland
Wales
Northern Ireland
Scotland
Please find below a template letter to your Members of the Scottish Parliament (MSPs) asking them to attend the Rare Disease Day reception at the Scottish Parliament on the 2nd March.
Download Scotland template letter (Word doc)
If you have RSVPd to attend the reception you will receive a slightly different template letter asking to meet them at the reception (this is the most effective way of securing attendance).
If you are not sure who your MSPs are, or if you would like to look up their contact details to email them instead, you can find this online at:
http://www.scottish.parliament.uk/msp/membersPages/MSPAddressPostcodeFinder.htm
Remember you have 8 MSPs in total, 1 constituency MSP and 7 regional MSPs. If possible, could you send/email the letter to each?
If you have any questions, are unsure of who are your MSPs or would like some assistance, please contact Claire Cotterill on claire@gig.org.uk or 0131 651 4805
Wales
Please find below a template letter to your Assembly Members asking them to attend the Rare Disease Day reception at the Welsh Assembly on the 24th February.
Download Wales template letter (Word doc)
If you have RSVPd to attend the reception you will receive a slightly different template letter asking to meet them at the reception (this is the most effective way of securing attendance).
If you are not sure who your AMs are, or you would like to look up their contact details to email them instead, you can find this online at:
http://www.assemblywales.org/memhome/member-search.htm
Remember you have 5 AMs in total, 1 constituency AM and 4 regional AMs. If possible, could you send/email the letter to each?
If you have any questions, are unsure of who are your AMs or would like some assistance, please contact Buddug Williams on williamsbg@cardiff.ac.uk or 029 20 68 76 46
Northern Ireland
Please find below a template letter to your Members of the Legislative Assembly (MLAs) asking them to attend the Rare Disease Day reception at the Northern Ireland Parliament on the 4th March.
Download Northern Ireland template letter (Word doc)
If you have RSVPd to attend the reception you will receive a slightly different template letter asking to meet them at the reception (this is the most effective way of securing attendance).
If you are not sure who your MLAs are, or you would like to look up their contact details to email them instead, you can find this online at:
http://www.niassembly.gov.uk/members/constmap_res.htm
Remember there are 6 MLAs representing each constituency. If possible, could you send/email the letter to each?
If you have any questions, are unsure of who are your MLAs or would like some assistance, please contact Stephen Nutt on stephen@raredisease.org.uk or 020 7704 3141
Hopefully together we can use Rare Disease Day as an opportunity to raise the profile of rare diseases.
Thanks once again for your cooperation.
Best wishes,
Stephen
stephen@raredisease.org.uk 020 7704 3141
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