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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Living with Lowes

HLRCC Family Alliance

LAM Action

Living Beyond a Diagnosis

Cystinosis Foundation UK

MLD Foundation

CDKL5 UK

Ben's Friends

Kirsty's Cause

Bone Cancer Research Trust

PVNH Support & Awareness

PID UK

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RDUK Membership and Support

Membership to Rare Disease UK is open to anyone with an interest in rare diseases and includes patients, family members, patient organisations, clinicians, researchers, academics and industry. Membership is completely free to anyone other than industry.

Please click the links below for more information on the following: