It will help ensure the
efficient use of scarce expertise, and the targeted use of health care resources to maximise the benefits for all patients and families affected by rare disease across the UK

Latest Partners

Action Duchenne

Arachnoiditis.co.uk

Association for Glycogen Storage Disease UK

British Paediatric Orphan Lung Diseases

HUM NAWA

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Contact

Genetic Alliance UK provides the secretariat for Rare Disease UK. For more information on Rare Disease UK, or to find out more about our work, please Send us an Enquiry or if you prefer you can contact us as follows:

a: The Secretariat, Rare Disease UK, Unit 4D, Leroy House, 436 Essex Road, N1 3QP, UK.
t: 020 7704 3141
f: 020 7359 1447
e:

Enquiry Form:

Please complete the form below to send us your enquiry (Note: * = Required fields):

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