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"Working together we can secure the best use of scarce expertise and resources, maximising the health gain for all those with rare conditions" Alastair Kent OBE, Chair of RDUK

Latest Partners

Living with Lowes

HLRCC Family Alliance

LAM Action

Living Beyond a Diagnosis

Cystinosis Foundation UK

MLD Foundation

CDKL5 UK

Ben's Friends

Kirsty's Cause

Bone Cancer Research Trust

PVNH Support & Awareness

PID UK

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Annual Reports and AGM Papers

Please follow the below links to see our annual reports and the papers from our AGMs.

Annual Report 2013

Annual Report 2011-2012

Annual Report 2010-2011

Annual Report 2009-2010

2010 Annual General Meeting Papers